Summer. School. on rare diseases

am Summer School on rare diseases

Table of contents Message from the organizing committee 3 IFMSA-UvA 4 Amsterdam 5 Academic Medical Centre 6 Educational program 6 Social program 8 Accommodation and venue 9 Application procedure 10 Organizing committee 13 Contact 14

Message from the Organizing Committee Dear future colleague, It is with great pleasure that IFMSA-UvA will organise the International Amsterdam Medical Summer School for the very first time. The I AM Summer School is designed for medical students from all over the world and will take place between the 17th and 23rd of July 2016 in Amsterdam, The Netherlands. The focus of this year will be on rare diseases. Health care has gone through many developments in recent decades. It is no longer just a matter between doctor and patient or limited to the medical office. Today’s health care has become a dynamic field of inter-professional collaboration with lots of different stakeholders. The most important stakeholders are the patient(s) (alliances), the health care providers, the health insurance companies, the pharmaceutical companies, scientists and politicians. Intense and optimal collaboration is necessary in order to provide the best possible care. In order to fulfil this versatile role and successfully collaborate with the other stakeholders, it is important for you as a future doctor to get in touch with all the parties involved in health care early in your career. In this way you will become familiar with the pitfalls and opportunities of each stakeholder and learn how to work together effectively. While the above-stated is relevant to every type of health care, it is of extra importance for those dealing with rare diseases. Because of the lack of simple, proper treatment the demand for excellent collaboration between the different stakeholders is often more evident. That is why we have chosen to use rare diseases as an example to illustrate the inter-professional collaboration between the different stakeholders. The I AM Summer School gives you a great chance to prepare yourself, on a basis of rare diseases, to work in a health care system where patients, doctors, insurance companies, pharmaceutical companies, scientists and politicians have an intrinsic role. By participating in this summer school you will learn to challenge them to collaborate, to think outside of the box and thereby to establish the most ideal patient care. A unique experience awaits you this summer in Amsterdam! We hope to see you there! With kind regards, Organizing Committee I AM Summer School 2015-2016

IFMSA-UvA The I AM Summer School is supported and organized by the International Federation of Medical Students’ Associations – University of Amsterdam (IFMSA-UvA). IFMSA-UvA is part of IFMSA-the Netherlands and the international IFMSA network. IFMSA strives for a world in which medical students unite for global health and are equipped with the knowledge, skills and values to take on health leadership roles locally and globally. IFMSA unites medical students worldwide to lead initiatives that impact positively the communities we serve. IFMSA represents the opinions and ideas of future health professionals in the field of global health, and works in collaboration with external partners. IFMSA builds capacity through training, project and exchanges opportunities, while embracing cultural diversity so as to shape a sustainable and healthy future. IFMSA-UvA is based in Amsterdam, has over 100 active members and organizes more than 25 activities and project every year in the field of in the field of public health, sexual and reproductive health, medical education, and human rights and peace. These activities range from sexual education for young children to lessons about the Dutch healthcare systems for migrants and lessons in medical sign language and Spanish. Thereby, IFMSA-UvA organized clinical and research exchanges for students to explore innovations in medicine and healthcare systems and delivery in other settings through the IFMSA network.

Amsterdam Amsterdam is the capital city of the Netherlands and also the largest city of the country. The city owes its name to its location on a 13th- century landscaped dam on the Amstel River. Shortly after 1300 the place was given municipal rights and grew in the Golden Age as one of the most important port and trading cities of the world. The city has a population of more than 800,000 inhabitants and is a true melting pot of cultures and nationalities, being the most international city of the world. Amsterdam has inhabitants with 177 different nationalities! Amsterdam is famous for its canals, which measure together more than one hundred kilometres. The three main canals ‘Prinsengracht’, ‘Keizersgracht’ and ‘Herengracht’ form concentric belts around the city, known as the ‘Grachtengordel’. Other popular attractions of Amsterdam include the Rijksmuseum, the Stedelijk Museum, the Van Gogh Museum, the Anne Frank House, the Royal Concert Hall and the Vondelpark.

Academic Medical Centre The Academic Medical Centre, or AMC is the university hospital affiliated with the University of Amsterdam. It was founded in 1983 when two hospitals from the city centre merged with the faculty of medicine of the University of Amsterdam. The AMC was the first academic medical centre in The Netherlands. Since 1984 Museum Vrolik has been located in the hospital with a collection including anatomical and embryological specimens. In 1988 the Emma Children hospital also became part of the AMC. The AMC is located in the Bijlmer neighbourhood, in the most south-eastern part of the city. The building of the AMC houses patient care, (medical) research and education in one building, which is quite extraordinary. The AMC has an intense cooperation with the other university hospital of Amsterdam, the VU University Medical Centre (VUmc).

Educational program During the I AM Summer School the participants will be offered an innovative educational program. The week will only contain a small number of classical lectures and the students are expected to fulfil an active role. They will be challenged to enter into dialogue with the different stakeholders, become an expert in a specific field and teach their knowledge to fellow students. It will be all about analysing problems from different perspectives and seek solutions, all on a basis of patients with rare diseases. Prior to the summer school, the students will gather information about the subject at home in order to get the most out of the week. They will do so via guiding assignments send to them. Each day of the educational program is composed of three components: specific knowledge, the common theme of approaching problems from different perspectives and other activities to acquire additional competencies. The first days a baseline level of knowledge on rare diseases and the different stakeholders involved will be created. On the first day the participants also will be divided in a group of a particular stakeholder. They have to get to know as much as possible of this stakeholder and his/her perspective and they will have the opportunity to enter into conversation with an expert in that field.

On the third day the groups will be redistributed and the participants will be introduced to a new assignment in which the knowledge of the different stakeholders is needed. Besides this common theme, there will be time to work on other issues in modern health care, such as how to deal with a very empowered patients and what to consider in ethical problems for patients with rare diseases. There will also be an interesting trip. Day 1 – Arrival day The first day will start with a nice evening program to welcome everyone in Amsterdam and to get to know each other. Day 2 – The start of the Summer School (clinical lectures, introduction assignment 1, lunch with group, lectures from stakeholders, interaction with patients) After a short introduction the day will start with some clinical lectures about different metabolic diseases. Just before lunch the participants will be divided in a group of a particular stakeholder. They have to get to know as much as possible of this stakeholder and his/her perspective and they will have the opportunity to enter into conversation with an expert in that field. To help the participants with that, all the different stakeholders will introduce themselves in the afternoon. The day will end with giving the participants the possibility to speak with different patients about their experiences with doctors and healthcare in general. Day 3 – Presentations of the different groups of experts The day will start where the last day ended, with patients, this time by a clinical lecture from a patient and after that multiple patient organizations that will tell something about how they started and in which way they create awareness. After the information from different patient organizations, the different groups get the chance to talk to the different stakeholders individually to become more and more an expert. After lunch there will be some time to finalize the presentations and then everyone can share their knowledge with the rest of the groups. Day 4 – Multidisciplinary consultation After a lecture about the ethics that play a role in the treatment of patients with rare diseases the groups will be redistributed and the participants will be introduced to a new assignment in which the knowledge of the different stakeholders is needed. After some time to think this assignment trough the participants get the possibility to see how important it is to involve different types of doctors in patientcare during a multidisciplinary consultation. In the afternoon everyone will share some stories about personal experience with patients with rare diseases and about how the care of patients with rare diseases differs between countries. Day 5 – informative trip At day 5 we will leave Amsterdam to visit a stakeholder at their own company and in the afternoon there will be plenty of time to think about the new assignment or to see some more from the city.

Day 6 – Last day of the Summer School At the last day the participants will practice with the communication with patients by a patientdoctor role-play based on situations where the patient knows more about their own disease then the doctor. After this practice it will be time to finish their final presentation and the Summer School will end with the presentation of the solutions of each individual group. Day 7 – Departure day

Social program Besides the educational program we will show you as much as possible of what Amsterdam has to offer. Of course, the city is well known for its history, bridges and nightlife. We will pay a visit to the famous Anne Frank-house, go on a canal tour nd explore the city by going out. Also, there will be an international cooking event and a pubquiz. In addition to all of this, every night we will go out for dinner at another place in order to give you the ultimate experience!

Accommodation and venue The accommodation during the I AM Summer School will be The Student Hotel. The Student Hotel is located in Amsterdam West and is so much more than just a place to sleep. It combines the comfort, privacy and quality you expect of a hotel with the fun and frolics you hope to find in a student house. The hotel has 706 rooms that include all the facilities to make your stay a pleasant one. All guests benefit from a private luxury bathroom, high speed internet and free Wi-Fi, flat screen TV, study and work areas, lounges, an on-site gym, restaurant and bar and a games room with ping-pong and billiard tables. From The Student Hotel the city centre and Schiphol Airport can be reached in 15 minutes. The major part of the educational program will take place at the AMC. Metro 50 stops very nearby and runs directly to the AMC in less than half an hour.

Application Procedure In order to apply for the I AM Summer School on Rare Diseases, please provide us with the following: • • • • • •

A motivational letter (300-500 words) in which you state at least: your full name, e-mail address, home address and phone number; your level of education and name of the university you are affiliated to; why you are interested in the I AM Summer School; and what you think to contribute to our Summer School. Curriculum vitae

You can send your motivational letter and curriculum vitae to apply.iamsummerschool.uva@ifmsa. nl. By applying you declare your willingness to pay the fee of maximum €505, if you are selected for participation. Application is open from March 4rd – April 4rd. All applicants will be informed no later than April 6th whether they are selected to participate in the I AM Summer School. Costs & payment The I AM Summer School will cost a maximum of €505,-. The exact price depends on the available funds and will be published at the latest on April 26th. If you are selected for participation, you will be asked to pay a deposit of €150,- before April 11th 23.59h CET in order to confirm your participation. Payment of the remaining amount is due at the latest on May 1st. Payment should be completed through online banking. Possible international transfer provisions should be payed by the participant. Cancellation and refund We like to inform you that we adhere to the following cancellation policy: a) Request for cancellation received before April 12: Full refund. b) Request for cancellation received between April 12 and May 1: No refund of the deposit, full refund of the remaining amount. c) Request for cancellation received between May 2 and May 12: Fifty percent refund of the total amount due. d) Request for cancellation received after May 12: No refund. In kindly ask to notice us as early as possible if you want to cancel your registration, so another student might be able to take your spot.

Visa information You may need a Schengen visa to stay in the Netherlands. Please find an overview of countries requiring a Schengen visa to visit the Netherlands through the following link. You can apply for a visa at the Consulate of the Netherlands in the country you legally reside. An application for a Schengen visa must be submitted to the Consulate at least 15 working days before the intended visit. If needed, invitation letters will be provided after your participation has been confirmed. Link: https://www.government.nl/topics/visa-for-the-netherlands-and-the-caribbean-parts-of-thekingdom/documents/publications/2013/11/28/nationals-of-the-following-countries-need-a-schengen-visa-for-a-stay-of-up-to-90-days-in-de-netherlands

The organizing committee Renée My name is Renée Burger, 21 year old. I finished my Bachelor in Medicine last year and will start my clinical internship in September. During the last years I’ve been member of the board of IFMSA-UvA and IFMSA-the Netherlands. I’m very enthusiastic to organize the I AM Summer School on Rare Diseases and hope to inspire you with this amazing subject.



Jeska My name is Jeska Fritzsche, I’m 21 years old and at this moment I almost finished a year as secretary in the board of IFMSA-UvA, after that I will start with my master. I’ve always been very interested in rare diseases already since a very young age and this curiosity is only growing. For this reason I really like to organize this summerschool and hope that other people will become just as enthusiastic about it as I am.



Guusje My name is Guusje Peters, a fourth year medical student at the University of Amsterdam. I like to participate in local, national and international activities from IFMSA and I like to work at improving the medical curriculum at my university. Next to that, I like to read, play field hockey and bake. For the summer school, I will be the treasurer together with Beau and I will also take care of a part of the educational program. I hope to see you in Amsterdam this summer!

Roel Welcome everyone! I guess if you’re reading this you’re either very interested in our Summer School or very bored. I do hope it’s the first! I am 26 years old and quite the Nestor of our little group! I’ve been active in IFMSA-NL for years. At the top of my list of activities within IFMSA-NL is being President for one beautiful year. But directly after that the I AM Summer School is a close second ofcourse. Visit Amsterdam and share in it’s delights while studying how to cope with the rare diseases in the world!

Anne My name is Anne Krijger and I’m 22 years old. At the moment I’m in my third year of medicine. In my free time I like to run, practise ballet and cook. For the summer school, I will be concerned about the educational program. I am really excited about the subject of the summer school and cannot wait to welcome you here in Amsterdam!

Cecile My name is Cecile Dekker. I’ve just finished my first year of studying medicine at the University of Amsterdam. My hobbies are playing sports, for example soccer and tennis. Also, I’m a huge fan of reading! Quite unusual for a Dutch person is the fact that I don’t like bread. I’m very much looking forward to the summerschool and I’m curious about how it’s all going to be. Demi Hi, my name is Demi Koolen. I’ve finished my second year of studying medicine. I love to make sculptures out of clay and I’m a very bad cook. I hope you will enjoy the week and that you’ll have a good impression of Amsterdam!

Contact For more info you can contact us at [email protected] or follow us on Facebook.